Dealing with Sensory Processing Disorder


Published:

"Mommy, I've got to be in this magazine so I can help other kids with sensitive skin," said Ayden Smith to her mother last year when she saw a copy of Piedmont Parent's first annual Exceptional Child magazine.

Ayden, 8, has Sensory Processing Disorder (SPD). Since she was a toddler, she has dealt with the day-to-day challenges of having what she refers to as "sensitive skin." Ayden wants to wear the same outfit every day; she has trouble showering and brushing her teeth because she can feel pain from the water on her skin or can't tolerate how the toothbrush feels on her teeth. She can have difficulty concentrating in school and needs a break from too much activity every couple of hours. At the same time, Ayden loves to play outdoors and can spend hours digging in the dirt and enjoying the sounds and textures of nature. She loves music and has a strong, outgoing personality. If asked by other kids about her disorder or why she wants to wear the same clothes every day, Ayden's response is, "I'm different, so?"

SPD is a neurological disorder in which children have difficulties with taking in, processing and responding to sensory information about the environment and from within their own body. Many kids who suffer from the disorder may find that the activities of everyday life, such as school and even self-care such as bathing or dressing, are extremely difficult, and for some with extreme sensitivity, sensory input may result in avoidance of activities, anxiety, fear and distress.

Ayden's mom, Blair Smith of Stoneville, says that she has come a long way in dealing with her disorder and can much better communicate how things bother her and is learning ways she can help herself. "The idea of sharing her story with readers of Exceptional Child was all Ayden's own idea," Smith says. "This just shows how her confidence has grown and how far she has come in dealing with this disorder."

Smith says that even as a baby, Ayden was an intense child — she was harder to feed and soothe and cried often especially in comparison to her twin sister, Dylan. Smith says she noticed other signs that her daughter reacted differently to everyday life. When the twins were around 3 years old, Smith took them swimming and noticed that Ayden would be out of the pool, licking the concrete. She also had prolonged temper tantrums, but once Ayden refused to wear any other clothing except a black dance leotard for two-and-half years straight, Smith knew something wasn't right. Her sister, who is a kindergarten teacher, suggested that Smith have Ayden tested for SPD.

Ayden received a diagnosis of dysgraphia, a deficiency in the ability to write, that often goes hand-in-hand with SPD. "Because SPD is not recognized as a disorder, we were originally denied services," Smith explains. "Once we had the dysgraphia diagnosis, we were able to get services covered through insurance." Smith says Ayden spent a year in occupational therapy at Cone Health Outpatient Rehab Center and continues with behavior therapy through Cone Health Developmental and Psychological Center in Greensboro, both of which have been monumental in coping with her disorder. She has also worked closely with Ayden's teachers to help her get a 504 Federal Education Plan so that she can have certain accommodations such as taking tests in a separate room or using headphones or a computer — small changes that have been key to her educational success.

Smith also says she attends a support group for families with children with SPD through the Family Support Network of Central Carolina. "Finding this support group made a huge difference for me in talking with other families experiencing similar things and realizing I am not alone," she says.

"When dealing with a child with SPD and having to go through the day-to-day fluctuations, it's really easy to get tired and frustrated," she says. "My best advice to other parents who have a child with SPD is to take a breath, refocus and educate yourself to learn what your child is going through so you can help them instead of getting frustrated."

Some children with SPD are either over-sensitive or under-sensitive, but for Ayden, who has a type of SPD called Sensory Modulation Disorder, she cannot regulate her responses and can go from being under-sensitive to over-sensitive

Examples of hypersensitivity include feeling pain from clothing rubbing against skin, an inability to tolerate normal lighting in a room, a dislike of being touched (especially light touch) and discomfort when one looks directly into the eyes of another person.

Blair Smith lives in Stoneville with her twin daughters, Ayden and Dylan, age 8.

Edit ModuleShow Tags
Edit ModuleShow Tags

Related Content

Kid-Friendly Music Festivals in the Carolinas

Regional music festivals offer fun for the whole family.

Must-See Holiday Light Shows Across North Carolina

’Tis the season for dazzling light displays. Here are our top picks of holiday light show extravaganzas across the state.

Applying to NC Colleges? Take an Inside Look at 16 NC Public Schools

These profiles detail everything from student-to-faculty ratios to acceptance rates and the percentage of students who successfully graduate in four years.
Edit ModuleShow Tags
Edit Module Edit ModuleShow Tags
Edit Module

Newsletter Sign-Up

Stay connected to what's going on for kids and families in the Triad by signing up for our FREE e-newsletters!

Subscribe

Edit ModuleShow TagsEdit ModuleShow Tags Edit ModuleShow Tags

Annual Guides

Education Guide

The all-new 2015-2016 Education Guide is packed with everything parents need to know to navigate more than 500 education options and resources in the Triad, including area preschools, private schools, public school systems, charter schools, boarding schools and academic resources.

GPS [Go. Play. See]

It's your complete family guide to Triad living. Parents are busy and on the go. Use this guide to help you explore all this great area offers for families in Winston-Salem, Greensboro, High Point and surrounding communities.

Exceptional Child

For parents of kids with special needs, finding help and support can be challenging. We've compiled valuable resources for Triad parents in our latest annual publication, Exceptional Child, which is also available as a digital guide.